When I can no longer grasp the tweezers to pull at the fine, blond blades between my eyebrows, please look closely. Pluck them all—imagine them as the weeds in the garden we never got to, the sumac growing up through the rhododendron. The mole on my left cheek—if you see me run my fingers over it as though I can still feel a hair breaking through, ask me about it before my finger rubs it raw. The tiny stubborn hairs beneath our chins that my mother and I fuss about, pull harder on those.
Humor me when I want to show our boys what my handwriting used to be, a specific if unwieldy cursive/print hybrid.
Two ice cubes in my coffee, please. Black. Please sit with me with a mug of water or milk in your hands if you don’t want any. Pretend it is coffee. Our son Johnny likes his with two scoops of hot chocolate and some sugar if you make it for him.
Please leave some lamps glowing from their corners so I can see on my way up to bed. They are beacons, and the dogs who love me have become obstacles.
Please don’t stop trimming my nails if I joke that you’ve gotten my finger. I still like to laugh.
For our son Sam, sometimes sneak him a snack at night. Make your way from the kitchen, up the stairs, through the laundry room by night light, tap softly on the door or call “Sam-Sam” so as not to scare him.
Please make sure I’m not wearing flip flops if I insist on some summer night that I can walk home. If I trip over the train tracks, ice my lip before I look in a mirror. Clean the blood before I taste copper.
Please scrub my scalp with shampoo and let the suds rinse through, but don’t shampoo the ends. No sulfates, please.
Brush my tongue as well as my teeth.
In the summer, run the razor up my shins and over my knees, and be careful around the ankles. Think of that space like the tender underside where your jaw turns to neck.
Please don’t let anyone convince you that I will be cured of this disease if a swarm of bees stings me. I know not to swat. I’ve made an art of being careful.
As our pets age, please don’t scold our old German Shepherd who loses control of her bowels. Show the old girl mercy, lift her nose from its angle toward the floor. Remember how she fishtails through the yard. Consider the tail she can no longer move, how it hangs like a dead branch when it used to wag.
When it thunders, I want to be wheeled to the porch. It is okay—even preferable—if the rain turns sideways and soaks my hair. I want to watch lightning over the church steeples. You don’t have to stay outside with me when the sun goes down and the mosquitos start their long drain, but please light a candle and offer me a book.
Open the curtains each morning, please. Even, and especially, in winter. I want to see what I can’t feel—shadows on snow dunes, shoe tracks on sidewalks—and know it is all still there. Ask me to shovel the walkway and pretend I’ve done it. Thank me, please, for the mulligatawny you’ve made for dinner, and remind me how it makes the house smell, like those old days. Give me time to blow on each spoonful before you tip it into my mouth.
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Sarah Cedeño’s work has appeared in The Journal, 2 Bridges, The Pinch, The Baltimore Review, New World Writing, The Rumpus, Bellevue Literary Review, and elsewhere. She teaches writing at SUNY Brockport and lives just a block away with her husband, two sons, German shepherd, and cranky old cat.
31 comments
Elizabeth Litfin says:
Sep 15, 2021
This is beautiful, Sarah. So sad, but yet uplifting.??
Sarah says:
Sep 16, 2021
Thank you so much for reading. I love how life is still beautiful and cozy during the hardest of times. Even if we don’t appreciate it in the moment!
Alice says:
Sep 15, 2021
So beautiful!
Sarah says:
Sep 16, 2021
Thank you!
Marilyn Wolf says:
Sep 15, 2021
This is phenomenal! This is how generations of my family have felt. Now I’m the oldest generation and it will be me. Thank you.
Sarah says:
Sep 16, 2021
??
MaxieJane Frazier says:
Sep 15, 2021
So stunningly poignant.
Sarah says:
Sep 16, 2021
Thank you for reading! ??
Paula Marchese says:
Sep 15, 2021
Thank you, Sarah. Beautiful and heart rending.
Sarah says:
Sep 16, 2021
Thank you for reading this, Paula! I hope you’re well ??
Nanette says:
Sep 15, 2021
Touching. So full of love. Thank you.
Sarah says:
Sep 16, 2021
Thank you ??
Sarah says:
Sep 16, 2021
Amazing essay!
Sarah C says:
Oct 7, 2021
Thank you, dear Sarah.
Frank Kuhn says:
Sep 16, 2021
My heart!
Sarah C says:
Oct 7, 2021
Thanks for reading, Frank! Hope to see you IRL soon!
Donna Kaz says:
Sep 17, 2021
Beautiful. Thank you, Sarah, for this lovely essay.
Gabriella Savarese says:
Sep 19, 2021
Beautiful essay, Sarah. You captured so much in so few lines.
Heather Bell Adams says:
Sep 20, 2021
Wow, this is a stunning piece. Thank you for sharing it with us. I will carry it with me.
Lois Perch Villemaire says:
Sep 22, 2021
Once I started I couldn’t stop reading. Beautiful!
Sarah Cedeno says:
Oct 2, 2021
Thank you for reading!
Elisaberh Anghel says:
Oct 22, 2021
Oh it is so tender and so painful. It is real pain and unfortunately around the corner for many.
Caitlin says:
Nov 11, 2021
I have MS, too, Sarah. And, I’m a writer. A fellow writer friend sent this to me and I’m so grateful she did. Love to you, your family, and all the positive vibes for a bright future, albeit uncertain.
Nik says:
Nov 15, 2021
This is breathtaking. Thank you.
Ellyn Bache says:
Jan 4, 2022
So poignant and powerful. Reminds me how small my own issues are so far with Parkinson’s, and how brave you are to share this with us.
rahul says:
Jan 10, 2022
Thank you, Sarah. Beautiful and heart rending.
Mary Rohrer-Dann says:
Jan 24, 2022
Beautiful and brave and joyous. Hoping that all of this is a long time coming.
MargaretLaDue says:
Jan 26, 2022
Beautiful essay, Sarah
Margaret LaDue says:
Jan 26, 2022
Beautiful essay, Sarah
Celia Olson says:
May 2, 2022
I was diagnosed in 1996, before symptoms started. I am a pianist, suddenly unable to open my hands wide enough to get 8 keys. Nobody in my family had MS, nor my grandparents. Last year a cousin younger than me had MS, she is 40. I have primary progressive MS. I do not walk for the last 18 years, I was born in 1962. I have had 6 strokes and 1 heart attack.The Rebif (beta-1a) did very little to help me. The medical team did even less. After roughly five unending years of trauma in the family my MS developed into progressive. There have been many changes in the last 3 to 4 years. Many falls, many fractured bones, and three moves all in five years. I have gone downhill. Considerably. We tried every shot available but nothing was working. There has been little if any progress in finding a reliable treatment for Multiple Sclerosis, I started on MS Herbal Treatment from Kycuyu Health Clinic, the herbal treatment immensely helped my Multiple Sclerosis condition, i had huge improvements. My life is back. I Adhere anyone reading this to try natural approach.
Jeanine Miller says:
Sep 12, 2024
My husband had MS-4 programme about 4 months ago. he sleeps soundly, works out frequently, and is now very active. It doesn’t make the MS go away but it did give him better quality of life.