Slow processing speed. Major deficits in executive functioning and short-term memory. Normal left and right hippocampal volume with low left and right hippocampal occupancy.
*
Here is the translation:
His broken handwriting, his stricken face, his blank or puzzled or fearful eyes.
Doors and drawers standing open, lights left on wherever he goes.
Two lamps taken apart to replace one bulb.
His footsteps slowly repeating the routes to someplace he can’t reach.
*
We are four years into his dementia. The professionals call this slow descent The journey, but I say that Holding someone’s hand while they drown gets closer to the daily truth of it.
*
What bird is that? He who was a serious birder asks this almost every time he hears a certain bubbling call.
A Summer Tanager, I say.
What bird is that?
A Summer Tanager.
Thanks to him, I’m a pretty good birder now. Thanks to him.
*
Most mornings in these pandemic days, when we drive past the YMCA and see people exercising in the parking lot, he says, That looks like a Zumba class.
Zumba’s on Friday night, I say, with what patience I can scrape together that day.
Friday night, I say, hoping that if I say it fast enough, say it one more time, it won’t pour through his mind like water through a sieve.
The habit of hope is hard to break.
Friday night, I say, but sometimes a flash-bang grenade goes off in my head, and I shout like a shaman trying to scare off evil spirits. I want my failures of kindness to be part of this story, too. I want to say he’s not the only one who fails.
*
I’ve been told that asking someone with dementia to remember makes them anxious, so I don’t say Remember that cold day’s walk when I’d forgotten my gloves and you gave me one of yours, and we each held the other’s ungloved hand until our hands got cold, then switched gloves and sides so we could each keep holding the other’s bare hand?
I don’t say Remember the sleety day when we saw the osprey stand up in the sky over the pond with its wings outstretched, like an archangel blazing in the air, and we thought it was there for us?
Look, Honey, you put all the avocado slices in one salad and none in the other, I say.
I say Honey out of habit now, and every time I remember the sweet weight that word used to carry I envy his forgetfulness, because you can’t grieve for what you’ve forgotten you had.
*
I’ve forgotten how to be your partner, he says one day. I wonder if it would help him to know that I’ve dropped that thread, too, somewhere in this maze we’re wandering in. I’m his caregiver now, and the distance between partner and caregiver can’t be measured.
Sometimes he surfaces, says he feels like he has no center anymore, nothing he can trust about himself, and I can’t say that isn’t true, because it is.
Every day before I get up I vow to do no harm to anyone.
I try and succeed and fail to be kind.
Sometimes it feels like I’m drowning, too.
*
And then one day while I was making the world’s best cheesecake for my son’s birthday, the man who was my partner came into the kitchen smiling. You made me a cheesecake once, when I was going through a hard time, he said.
I’m sorry, but that didn’t happen, I almost said, as though I still had faith that if I corrected enough mistakes he’d stop making them, but the thought had made him so happy that for once, for once, I said nothing.
Because, really, what does it matter that I didn’t make him a cheesecake? As that imagined memory streaked through his mind like a shooting star, its light, I hope, was briefly real.
What matters is that the story the memory rescued, the one about loving and being loved, was true.
__
Pam Durban is the author of two collections of short stories, Soon and All Set About with Fever Trees, and three novels, The Laughing Place, So Far Back, and The Tree of Forgetfulness. Her stories and essays has been published in many magazines and anthologies including The Best American Short Stories of the Century, edited by John Updike, and The Pushcart Prize, Best of the Small Presses and The Best of Brevity. She is the recipient of a National Endowment for the Arts Creative Writing Fellowship and a Whiting Writer’s Award as well as the 2001 Lillian Smith Award for Fiction for So Far Back. “Remember?” is her second essay to appear in BREVITY. She lives in Chapel Hill, NC.
10 comments
Liza Porter says:
May 21, 2021
Dear Pam Urban, this essay moved me so and reminded me of my mother and how long it took me to stop asking her “remember” or correcting her memories when I realized it was for me, not her. Finally, the baby of the family (60 years old) grew up! Thank you for writing this essay.
Pam Durban says:
May 22, 2021
Dear Liza Porter,
Thank you for your kind words about my essay. Every time I see my former partner (he lives in a small residential care facility now) I have to remind myself again not to ask him to remember something we once shared. That habit is hard to break, and when the stories of the past disappear, maybe our sense of the continuity and coherence of our lives fades, too.
All best,
Pam Durban
Amanda Davies says:
May 26, 2021
My father in law has dementia so this essay is truly beautiful, empathetic and reassuring for the caregivers. Thank you for your honesty.
Laurel Hall says:
May 26, 2021
My husband is entering this territory. His memory is failing, but I’m sure there’s much, much more failing to come. Alas, I’m not known for my patience. The road ahead will be difficult, to say the least.
Thank you, though, for your essay. It shows me glimpses of the future.
Phyllis Link says:
May 29, 2021
This is so lovely in its painful sweetness, its sadness, its reality. Thanks for sharing this one with the world.
Katie Fife says:
Jun 23, 2021
I had recently lost my uncle to this. He was so young, probably around 50 (which is very uncommon this early in life). Reading this essay brings back so many memories of him and this tough period in my family’s life. It’s almost like he knew he was forgetting. The only thing he could remember is that he couldn’t remember.
This essay was so beautifully put, and in a perspective I had never imagined from. Learned so much from this trial, and I am sure you will too. Wishing you, your family, and your partner all the best. Thank you so much for this.
Chris says:
Jun 30, 2021
Beautiful writing. Thank you for sharing.
Dan says:
Aug 28, 2021
Such a wonderfully honest and moving piece.
Katherine says:
Sep 10, 2021
I love that you told this story with such concrete incidents, like when I found that my mother-in-law had emptied the refrigerator onto the kitchen table–which was full now of warm milk cartons and watery ice trays–and filled every shelf in the fridge with carefully placed tea bags. Or when she roamed the street at night in her nightgown, lights on, doors open at her house, asking out loud, Where is everyone? Before we brought in 24/7 help.
We can’t imagine what will happen before it happens.
I’ll try to remember not to ask, Remember?
Pam Durban says:
Jan 14, 2022
Thank you, Katherine. It’s so true that we can’t imagine what will happen before it happens. I hope you’ve been able to find good care for your mother-in-law. I still have to remind myself not to ask him to remember something about the life that we once shared.