Posts tagged "illness/disability"
When the Scheduler Calls and Refers to My Upcoming Procedure as an “Emergency Colonoscopy”

When the Scheduler Calls and Refers to My Upcoming Procedure as an “Emergency Colonoscopy”

The images that flash in my mind are not my grandfather’s last breaths, his frail wrinkled body giving up after cancer ate away his insides. Not my mother lying in a hospital bed after the surgery to remove nine inches of her diseased intestines. Not choosing the cheapest wooden casket and a burial plot near...
A Small, Previously Unknown, Hole in My Heart

A Small, Previously Unknown, Hole in My Heart

The afternoon my husband left me, I collapsed on the floor in a fetal position, my face at the level of the birds on our stone patio. Through the sliding glass door, I watched juncos, sparrows, and chickadees alight to peck at seeds, jostle one another, then fly away. Over and over, they came and...
The Last Time I Climbed A Mountain

The Last Time I Climbed A Mountain

There are a thousand things I can’t recall: the date, the place, the details of the trail. I was nineteen, maybe twenty. It was a strong ascent, somewhere above St. Gallen in the Alps. All the rest has gone to mist. What stays: the incandescent sunshine. How the air bit thin and clean against my...
Return Journey

Return Journey

The night of the Space X Dragon launch, my father collapses at the kitchen table. A week earlier, he had his third surgery to correct the way his muscles, spasming with Parkinson’s, pulled at his spine, forced it into a parabolic function instead of a proud column. For the third time, a doctor split him...
The Space Between the Shower and the Toilet

The Space Between the Shower and the Toilet

I hear things my husband does not. See movement from the corners of my eyes. Watch as shadows fade and darken with the deliberate pulsing of our overhead lights. “It’s an older house,” he likes to explain. “Someday, you’ll get used to it.” The shoddy electrical work. The hiss-growling furnace. The groaning water pipes, rusted...
Xibalbá :: Ritual

Xibalbá :: Ritual

_____ _____, (birthdate). I slide my left arm out of the pink hospital wrap before the technician says Good. Twenty-five days of _____ _____, (birthdate) & the response, Good, that’s you. Each step of cancer treatment becomes its own type of ritual. With chemo: Say your name & birthdate, Heparin to clean the port, water...
My Pain Doctor Asks What My Goals Are

My Pain Doctor Asks What My Goals Are

I want to tell him that the chronically ill don’t have goals. They don’t want to be ill. I want my old body back. I don’t want to be in his office. I tell the doctor, I want to stand long enough to make grilled cheese, want to walk the dark living room at night...
Final Affairs

Final Affairs

Find all my passwords on a yellow legal pad under my laptop; remember last winter Steph wrote my obituary, read it again before you publish it, make sure it is laugh-out-loud funny and don’t pay to publish it in the local paper but instead blast it on social media; remember to update my blog; call...
I Know My Body Tried to Save Me

I Know My Body Tried to Save Me

Dirty, Poz, Faggot, G.R.I.D: pseudonyms for the boy I don’t want to be. Gay-related. Gay-related. I don’t want to be gay-related. I don’t want to be human-immunodeficient either. I don’t want to be in this I.D. clinic reading Tiny Beautiful Things, a book of collected advice columns, a bible that replaced my bible, turning random...
What I Did Not Yet Know

What I Did Not Yet Know

When surgeons wheeled away my sister, her twenty-five-year-old body so tiny and wracked with illness that there was room for a second body on the gurney, I thought about throwing myself onto the bed next to her, remembered how doctors said, even before she was born, that her life would be short and painful, that...
Spoiler

Spoiler

 Endings to be useful must be inconclusive. —Samuel R. Delaney, The Straits of Messina I In the documentary short The Lion’s Mouth, Scottish actress and director Marianna Palka decides to get tested for Huntington’s disease. The condition runs in her family; it doesn’t walk. Doctors describe the disease as akin to having Alzheimer’s, Parkinson’s, and...
The Base Note

The Base Note

Every voice sounds a chord. Every voice has notes and layers, the way fragrances do: the top note, the one you notice first, is light, citrus; the middle note, the heart, is resonant like cinnamon, jasmine; and the base note leaves the lasting impression, a weighted blanket of sandalwood and vanilla. I experience my husband’s...
After the Appointment

After the Appointment

  I’ve dumped nearly everything from my car’s glove box—registration, flashlight, crusty hair ties—while I paw around for a tool to open a bottle of wine. This bottle of wine, the first screwtop I spotted in 7-11 and purchased in a rush. My hands aren’t strong enough for the feeble job of unscrewing (as if...
When the Uber Driver Asks, Do You Have Any Kids?

When the Uber Driver Asks, Do You Have Any Kids?

  and they always ask, the other me doesn’t say no. She doesn’t get the follow-up questions – Do you plan to, later? or, worse, Why not? Other Me doesn’t have to weigh whether to tell a lie, something easy, or to plunge into the sudden intimacy of the truth of life as a disabled...
Decade

Decade

I sit on the pool’s edge and watch my daughter swim. She dives underwater then surfaces beside me. “Momma,” she says, “I was trying to see how long I could hold my breath…what it would be like to drown but couldn’t. I popped up for air.” I kiss the top of her swim cap. “Your...